Thursday, January 19, 2012

Foundation for Angelman Syndrome Therapeutics PSA by Hulu



Amazing!! Hulu.com, a website offering on-demand streaming video of TV shows, movies and webisodes to MILLIONS of viewers is now running the following Public Service Announcement for Angelman Syndrome.Thank you Hulu.com!

Saturday, January 7, 2012

FAST and Angelman Syndrome Go Primetime!!






Wow!! Colin gave an absolutely beautiful speech at the end. Had me in tears!! He is such a beautiful soul, and a great dad to James. I loved his tribute to James' mom, Kim, and to all of the rest of us Angelman parents. Super sweet! I laughed so hard at the part about James later licking his award! That was something most people in the audience didn't get, but WE all do!!! The whole thing is lovely!! Watch!!

Love one another~Yvonne